I have set myself a challenge to complete the 1/2 marathon in Taupo in August, I have set up a blog and am using it to fund raise for Mental Health Foundation of New Zealand. To check out the blog click here
I am looking for people to join me so go check it out :-).
Wednesday, 25 March 2009
Friday, 20 March 2009
Our Day with Attitude TV
Today was the day and what an awesome day... the team that came down were fantastic...... we could not have asked for a nicer group of people to do the filming..... so Thank You!!!!.
Chris was really relaxed with them and it was just a fantastic day and on that note I will leave you with pics.......
Lunch at the Mount
Mount Beach
Cameraman
Director and Cameraman
Steph, Chris and Curtis
Director
Sound Man
Curtis and Me
Chris was really relaxed with them and it was just a fantastic day and on that note I will leave you with pics.......
Curtis (Presenter) and Chris
Lunch at the Mount
Mount Beach
Cameraman
Director and Cameraman
Steph, Chris and Curtis
Director
Sound Man
Curtis and Me
Wednesday, 18 March 2009
Wednesday.... 18th March 09
Just a couple of photos of Chris at the Special Olympics school swimming the other week.. got to love that smile :-)
Well got a phonecall from school yesterday at about 11am could I come and pick Chris up his neck was so sore, so picked him up after a meeting I had for him at lunchtime, gave him Brufen and into bed slept all afternoon, got up for a couple of hours and then back to bed to sleep.
I think the hardest thing I find with his ticcing is the pain and exhaustion that goes with it when he tic's badly..... he has woken up and his neck is still tight and stiff.... and he says it is still really sore so not sure if he will go in to school today or not.... it is a good thing I don't have a job.... Yesterday I had a meeting, and then I had to go get him at 12pm, today I have his IEP (or whatever they are called, GSE change the names of stuff all the time) at school and then have Jan from Youth Horizons coming to work with Chris on some OCD stuff this afternoon. Tomorrow have another meeting for him so tell me how I am suppose to fit a job in there as well..... Monday we have an appointment at the hospital with the psychological services at the public hospital - and no it is not the Child Adolescent Mental Health team - have no idea who they are an appointment card came yesterday in the mail was going to ring and find out who they are but hey might leave it for a surprise.... lol.
As Chris said yesterday oh well the TV cameras will have good coverage of him ticcing if he is still like this on Friday..... I said the one thing I love about Attitude is that they are not there to film him ticcing (unlike some other TV programs we have been approached for) they are here to film him as a person.... and on that note my day begins so catch you later all :-).
What I love about Chris is that when people ask about his tics, he just causually says "oh I am going through a waxing period with my tics" whereas a few years ago, he would not go anywhere cause he was so embaressed about them but now he accepts they are part of him and will just talk about a lot of his stuff now......and we all know that once these kids accept there disabilites they are the ones that will best educate the public.....
Well got a phonecall from school yesterday at about 11am could I come and pick Chris up his neck was so sore, so picked him up after a meeting I had for him at lunchtime, gave him Brufen and into bed slept all afternoon, got up for a couple of hours and then back to bed to sleep.
I think the hardest thing I find with his ticcing is the pain and exhaustion that goes with it when he tic's badly..... he has woken up and his neck is still tight and stiff.... and he says it is still really sore so not sure if he will go in to school today or not.... it is a good thing I don't have a job.... Yesterday I had a meeting, and then I had to go get him at 12pm, today I have his IEP (or whatever they are called, GSE change the names of stuff all the time) at school and then have Jan from Youth Horizons coming to work with Chris on some OCD stuff this afternoon. Tomorrow have another meeting for him so tell me how I am suppose to fit a job in there as well..... Monday we have an appointment at the hospital with the psychological services at the public hospital - and no it is not the Child Adolescent Mental Health team - have no idea who they are an appointment card came yesterday in the mail was going to ring and find out who they are but hey might leave it for a surprise.... lol.
As Chris said yesterday oh well the TV cameras will have good coverage of him ticcing if he is still like this on Friday..... I said the one thing I love about Attitude is that they are not there to film him ticcing (unlike some other TV programs we have been approached for) they are here to film him as a person.... and on that note my day begins so catch you later all :-).
What I love about Chris is that when people ask about his tics, he just causually says "oh I am going through a waxing period with my tics" whereas a few years ago, he would not go anywhere cause he was so embaressed about them but now he accepts they are part of him and will just talk about a lot of his stuff now......and we all know that once these kids accept there disabilites they are the ones that will best educate the public.....
Monday, 16 March 2009
16th March 09
Well after not seeing tics in months and months (well not bad ones) Chris is having bad ones again now, all neck and head movements but bad enough his neck is sore.... bugger bugger bugger... have no idea why he does not seem stressed.....
Apart from that all is going well still, he is more settled this week after not having a great week last week both at home and at school.
This Friday Attitude is coming for the filming, he is excited about that so maybe that is what is causing the tics... anyway not much else to say so on that note am outta here will be back on the weekend with an update on Friday and hopefully some photos of the day :-).
Apart from that all is going well still, he is more settled this week after not having a great week last week both at home and at school.
This Friday Attitude is coming for the filming, he is excited about that so maybe that is what is causing the tics... anyway not much else to say so on that note am outta here will be back on the weekend with an update on Friday and hopefully some photos of the day :-).
Thursday, 5 March 2009
Another update....
Well after decreasing Chris's meds, we are increasing them again, lets just say he got into a bit of trouble at school, why a combination of things I think, 1 being he has this whole new world open to him (school) and he is trying to see where he fits in, 2: the decrease in meds I feel had a part of it as well. Anyway things are improving again.
Chris is loving school which is so nice to see and it is lovely to see him smiling and ready and rearing to go when the taxi arrives to pick him up.
Some more great news is that Attitude TV (Channel 1 Sunday 9.30am) is coming to do a story on Chris on the 20th March, I am pleased about that as they are not going to focus on just the Tourettes or OCD but they are going to focus on him as a person with mental and neurological issues. If it makes 1 person understand kids like Chris better then it will all be worth it and also knowing what sort of stories they do it can only be positive. Chris is excited about this too.
Chris did the school special olympics swimming the other week, his relay team got a first and he got a second for 25m freestyle and third in Breastroke, which was meant to be Backstroke but somewhere along the line they got it muddled but was proud of him for doing it anyway.
High and Complex Needs well this is still ongoing, the application is going ahead again so cross fingers we will hear in the next month or so.
We also have Youth Horizons Trust wrap around program in our home, right now we are working on some of the OCD stuff... she (Jan) has only just begun and I can see it will be a long and slow process but just maybe we can work trough this OCD stuff.
So yes quite a bit has happened but right now Chris is doing ok and he is happy and I couldn't be happier right now with that..... back in a couple of weeks to let you know how the filming goes.... anyone know how to lose 30 kilos in 2 weeks lol.....
Have fun and take care all catch you soon :-)
Chris is loving school which is so nice to see and it is lovely to see him smiling and ready and rearing to go when the taxi arrives to pick him up.
Some more great news is that Attitude TV (Channel 1 Sunday 9.30am) is coming to do a story on Chris on the 20th March, I am pleased about that as they are not going to focus on just the Tourettes or OCD but they are going to focus on him as a person with mental and neurological issues. If it makes 1 person understand kids like Chris better then it will all be worth it and also knowing what sort of stories they do it can only be positive. Chris is excited about this too.
Chris did the school special olympics swimming the other week, his relay team got a first and he got a second for 25m freestyle and third in Breastroke, which was meant to be Backstroke but somewhere along the line they got it muddled but was proud of him for doing it anyway.
High and Complex Needs well this is still ongoing, the application is going ahead again so cross fingers we will hear in the next month or so.
We also have Youth Horizons Trust wrap around program in our home, right now we are working on some of the OCD stuff... she (Jan) has only just begun and I can see it will be a long and slow process but just maybe we can work trough this OCD stuff.
So yes quite a bit has happened but right now Chris is doing ok and he is happy and I couldn't be happier right now with that..... back in a couple of weeks to let you know how the filming goes.... anyone know how to lose 30 kilos in 2 weeks lol.....
Have fun and take care all catch you soon :-)
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