UPDATE: Found out the High and Complex Needs has been approved a long 2 years but we got there.....
Well we hit the TV screens yesterday at the moment you can watch it "here", click on part 3 but I think it is only available to New Zealand viewers only but come about Friday it will be available on Youtube which I will post a link to.
Tomorrow is decision day for the High and Complex needs, and we should hear within 5 working days so as you can tell it will be a stressful week for me.
Don't forget to check out my other "blog" to fund raising for Mental Health, which I was doing the 1/2 Marathon but due to my leg still playing up have changed it to a 2.8K surf swim.
Here it is on YouTube:
Monday, 8 June 2009
Thursday, 21 May 2009
So whats been happening......
A hell of a lot - still waiting on the High and Complex needs but finally after 2 years they tell me I will know the outcome by the 16th June, so fingers and toes crossed it is going to be a good outcome.
Chris has been doing awesome apart from the last 48 hours, not sure if he is having waxing mood swings if that is possible but he is having them and also he is ticcing quite a bit.
Chris for the last 3 nights has been eating dinner with us at the table and better still eating what we are eating that is a huge breakthrough been years since that has happened long may it last..... we also have been working on his social skills and he is now eating of cafe plates still working on the drinking glasses though.
There was in incident at school last week which has knocked Chris back a bit, I can not discuss it on here at the moment, but it involved a teacher aid (no not his one) and Chris at the moment the school has put it in the hands of the lawyers/unions etc.....
Chris has come so far the last few months it is wonderful, certainly still a battle but I feel like we are getting somewhere. It is not Chris giving me the stress it is dealing with things like High and Complex needs, the incident at school last week etc etc anyway thats it for now I will let you know as soon as i know about the HCN but cross fingers for me it will get approved please.........
Chris has been doing awesome apart from the last 48 hours, not sure if he is having waxing mood swings if that is possible but he is having them and also he is ticcing quite a bit.
Chris for the last 3 nights has been eating dinner with us at the table and better still eating what we are eating that is a huge breakthrough been years since that has happened long may it last..... we also have been working on his social skills and he is now eating of cafe plates still working on the drinking glasses though.
There was in incident at school last week which has knocked Chris back a bit, I can not discuss it on here at the moment, but it involved a teacher aid (no not his one) and Chris at the moment the school has put it in the hands of the lawyers/unions etc.....
Chris has come so far the last few months it is wonderful, certainly still a battle but I feel like we are getting somewhere. It is not Chris giving me the stress it is dealing with things like High and Complex needs, the incident at school last week etc etc anyway thats it for now I will let you know as soon as i know about the HCN but cross fingers for me it will get approved please.........
Wednesday, 25 March 2009
My 1/2 Marathon Challenge...
I have set myself a challenge to complete the 1/2 marathon in Taupo in August, I have set up a blog and am using it to fund raise for Mental Health Foundation of New Zealand. To check out the blog click here
I am looking for people to join me so go check it out :-).
I am looking for people to join me so go check it out :-).
Friday, 20 March 2009
Our Day with Attitude TV
Today was the day and what an awesome day... the team that came down were fantastic...... we could not have asked for a nicer group of people to do the filming..... so Thank You!!!!.
Chris was really relaxed with them and it was just a fantastic day and on that note I will leave you with pics.......
Lunch at the Mount
Mount Beach
Cameraman
Director and Cameraman
Steph, Chris and Curtis
Director
Sound Man
Curtis and Me
Chris was really relaxed with them and it was just a fantastic day and on that note I will leave you with pics.......
Curtis (Presenter) and Chris
Lunch at the Mount
Mount Beach
Cameraman
Director and Cameraman
Steph, Chris and Curtis
Director
Sound Man
Curtis and Me
Wednesday, 18 March 2009
Wednesday.... 18th March 09
Just a couple of photos of Chris at the Special Olympics school swimming the other week.. got to love that smile :-)
Well got a phonecall from school yesterday at about 11am could I come and pick Chris up his neck was so sore, so picked him up after a meeting I had for him at lunchtime, gave him Brufen and into bed slept all afternoon, got up for a couple of hours and then back to bed to sleep.
I think the hardest thing I find with his ticcing is the pain and exhaustion that goes with it when he tic's badly..... he has woken up and his neck is still tight and stiff.... and he says it is still really sore so not sure if he will go in to school today or not.... it is a good thing I don't have a job.... Yesterday I had a meeting, and then I had to go get him at 12pm, today I have his IEP (or whatever they are called, GSE change the names of stuff all the time) at school and then have Jan from Youth Horizons coming to work with Chris on some OCD stuff this afternoon. Tomorrow have another meeting for him so tell me how I am suppose to fit a job in there as well..... Monday we have an appointment at the hospital with the psychological services at the public hospital - and no it is not the Child Adolescent Mental Health team - have no idea who they are an appointment card came yesterday in the mail was going to ring and find out who they are but hey might leave it for a surprise.... lol.
As Chris said yesterday oh well the TV cameras will have good coverage of him ticcing if he is still like this on Friday..... I said the one thing I love about Attitude is that they are not there to film him ticcing (unlike some other TV programs we have been approached for) they are here to film him as a person.... and on that note my day begins so catch you later all :-).
What I love about Chris is that when people ask about his tics, he just causually says "oh I am going through a waxing period with my tics" whereas a few years ago, he would not go anywhere cause he was so embaressed about them but now he accepts they are part of him and will just talk about a lot of his stuff now......and we all know that once these kids accept there disabilites they are the ones that will best educate the public.....
Well got a phonecall from school yesterday at about 11am could I come and pick Chris up his neck was so sore, so picked him up after a meeting I had for him at lunchtime, gave him Brufen and into bed slept all afternoon, got up for a couple of hours and then back to bed to sleep.
I think the hardest thing I find with his ticcing is the pain and exhaustion that goes with it when he tic's badly..... he has woken up and his neck is still tight and stiff.... and he says it is still really sore so not sure if he will go in to school today or not.... it is a good thing I don't have a job.... Yesterday I had a meeting, and then I had to go get him at 12pm, today I have his IEP (or whatever they are called, GSE change the names of stuff all the time) at school and then have Jan from Youth Horizons coming to work with Chris on some OCD stuff this afternoon. Tomorrow have another meeting for him so tell me how I am suppose to fit a job in there as well..... Monday we have an appointment at the hospital with the psychological services at the public hospital - and no it is not the Child Adolescent Mental Health team - have no idea who they are an appointment card came yesterday in the mail was going to ring and find out who they are but hey might leave it for a surprise.... lol.
As Chris said yesterday oh well the TV cameras will have good coverage of him ticcing if he is still like this on Friday..... I said the one thing I love about Attitude is that they are not there to film him ticcing (unlike some other TV programs we have been approached for) they are here to film him as a person.... and on that note my day begins so catch you later all :-).
What I love about Chris is that when people ask about his tics, he just causually says "oh I am going through a waxing period with my tics" whereas a few years ago, he would not go anywhere cause he was so embaressed about them but now he accepts they are part of him and will just talk about a lot of his stuff now......and we all know that once these kids accept there disabilites they are the ones that will best educate the public.....
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